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SLE – 29 Oct 2017

Still suffering from stomach pain and palpitations.

I feel terrible today and I’m lethargic but I need to be somewhere.

I feel dehydrated and I want to vomit. Nauseous.

My brain is not working. When people ask questions, it takes awhile for me to process. Its like my brain is full of clouds floating aimlessly inside my head and the answer is somewhere at the bottom and I couldn’t get to it. I want to seriously bang my head on a wall for being slooooowww.

SLE – 20 Oct 2017

For the past two weeks I’ve been having stomach pains and palpitations. My extremities and sometimes my face would feel cold with tingling sensation but they’re not numb. I feel tired. Small movements and talking makes me tired.

I feel dehydrated. Drinking water does not satiate the thirst.

Sometimes I can smell something burning or like someone is smoking (Phantom smell?). At times I’d get a headache because of the smell.

Friend Dr J- suggested I schedule an appointment with Dr Basco, Gastro from SLMC-BGC and rheumy at Lourdes – Dr Ana Hernandez (Medical Arts Rm 208) and fo back to Dr Ng (Neuro).

SLE – 27 Sep 2017

  1. Discharged from St Lukes without diagnosis
  2. SLE not in flare. Not epilepsy
  3. Still slightly dizzy
  4. No stomach pain

SLE – 22 Sept 2017

  1. Woke up from excruciating stomach pain.
  2. Fainted. In and out of consciousness for 1 hour.
  3. (Accdg to Avery) 2x seizure. I fainted, became rigid and had a seizure for less than 1 minute. I woke up, told her about something, fainted again and had another seizure.
  4. Slurred speech for about an hour.
  5. Hands, feet, shoulders and face are cold and has tingling sensation the whole day. Not numb.

Was brought to St Lukes BGC ER and got admitted.

Stylist in Pocket: A convenient way to do your shopping

When you have Lupus, an activity as fun as shopping can prove to be off-putting. You have to get ready, drive, park, enter the mall, enter shops, try on clothes, enter another shop, try clothes again, and repeat.

Getting myself ready is a daunting task for me, especially on days when I have a flare. Walking a few steps, getting up or a task as simple as brushing my teeth would make me dizzy because my heart would be beating so fast I’d feel like I just did a 7-minute HIIT workout — today is a very good example. I am just lying down for the past 2 hours and yet my heart is beating fast. On days like this, I would tell my mom that I wish she has the wheelchair with her so I can still go to the mall even if I’m tired. You can just imagine how frustrating it is for me to shop for clothes.

2 years ago I saw the ad of Stylist in Pocket on Facebook. What they do is provide a stylist for you either online or you can schedule a home visit and they will bring the clothes to your home where you can try them out. The best part is that the service is free and you’re not obligated to buy anything.

I wanted to try their Home Visit service but I was a bit hesitant to because I thought they, or the clothes, would be expensive. And although it says on the ad that you do not have to buy any of the clothes they bring to your home — still, it sounded too good to be true. Finally, I gave in last week and decided to try their service. I booked an appointment, filled out a form, and entered my profile. The next day, I received an SMS confirming my appointment. On the day of the appointment, they arrived on time and they brought 2 racks of clothes for me to try. Krish, my stylist, arrived with 2 assistants and they helped me try the outfits that they brought. What I liked about them is they give you honest feedback on how the outfits look on you. No sugar coating. No BS. They will also tell you what shoes will match the outfit that they picked for you. If the clothes need altering, no problem — they will alter it for you and deliver it to you FREE

One of the dresses that I got needed altering and to my surprise, it was delivered the next day!

I wasn’t feeling well when they arrived and I got dizzy about an hour into the session. Imagine if I was out while this happened. Not the end of the world but it’s a hassle, not for me, but for my companion. At that point, I realised I made the right decision in getting their service. Overall, it was a fun and rewarding experience and I am looking forward to being styled again sooner than later. Their customer service is simply amazing!

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